Friends, family, and medical personnel found ways of providing for all of my physical needs, but I could only think of myself as being completely, utterly helpless. My right arm, the one that hadn’t been broken, had so many IVs in it that they had a piece of wood taped to me so I couldn’t bend the arm.
I had IVs everywhere. They ran into my chest and entered the tops of my feet. They lined up in a major tube that went directly to my heart through my chest. Many of my veins collapsed. I was so completely incapacitated they had to lift me off the bed with chains to change my bedding or do anything else that required moving me.
I was losing weight at an alarming rate, which scared the doctors. I just couldn’t eat anything and atrophy had set in. During the nearly four months I stayed in the hospital, I lost about sixty pounds. Before the accident I had weighed 210, and I got down to less than 150. The only way they could determine my weight was to put me in a sling like a baby to lift me up off the bed and weigh me. They tried to coax me into eating and tempted me by preparing my favorite foods, but nothing tasted good. Just the smell of food nauseated me. I had no appetite. I tried to eat, I really did, but I couldn’t handle more than a few bites.
I assumed that depression stopped me from eating, although I don’t know if that was the cause. I do know that when I tried, I couldn’t force myself to chew anything. I didn’t even want to swallow.
They attached me to a morphine pump they called a PC. Whenever the pain was really bad, I pushed a button to give myself a shot. I had to have pain medication constantly. At first I tried to resist taking more painkillers, but the doctor rebuked me for that. He said that my body was tensing from the pain and that retarded my healing.
At night they gave me additional medication to try to make me sleep. I write
try
because the additional medicine didn’t work. Nothing they did put me to sleep—not sleeping pills, pain shots, or additional morphine. I had no way to get comfortable or even to feel relieved enough from pain to relax.
I’ve tried to explain it by saying it this way: “Imagine yourself lying in bed, and you’ve got rods through your arms, wires through your legs, and you’re on your back. You can’t turn over. In fact, just to move your shoulder a quarter of an inch is impossible unless you reach up and grab what looks like a trapeze bar that hangs above your bed. Even the exertion to move a fraction of an inch sends daggers of pain all through your body. You are completely immobile.”
Because I began to break out with bedsores on my back due to being in one position too long, the hospital finally provided a special waterbed that constantly moved. That did take care of the bedsores.
The only time I ever left the room was when they wheeled me down to X-ray, which was always an adventure. Because of all the metal parts and equipment on me, they had trouble figuring out how to x-ray me. Three or four men wore lead suits in the X-ray room and held the lens and plates behind my steel-encased limbs, because no machine was designed to x-ray those types of things.
That also meant that some days I spent two or three hours in X-ray while the technicians tried to figure out how to take a picture so the doctors could see whether the bones were knitting. They had no precedent for a case such as mine.
When someone came to wheel me to X-ray, he’d always say, “We’re taking a trip down the hall.”
That was all they had to say, because I knew what they meant. To distract myself as the gurney cruised down the long hallways, I played a game of connect-the-dots with the ceiling tiles. I started that the day I came back from the first surgery. I was probably hallucinating, but I remember the ICU unit was brand-new, and I was the only patient. When they brought me in, I was moaning and couldn’t stop. Then I saw the ceiling tiles, and as I stared at them, it seemed as if they were running together and forming some kind of pattern that I couldn’t figure out. In my mind, I began making pictures and designs out of them. As I did that, I’d also think,
I’m going completely crazy.
But I did it anyway. Eventually, connecting the dots became a form of distraction allowing me to focus, if only momentarily, on something other than my pain.
The worst daily torment took place when a nurse cleaned the pinholes where the wires went into my skin. All the nurses that treated me on the orthopedic floor, the twenty-first floor of St. Luke’s Hospital, had to be taught how to clean those pinholes. Because they didn’t want the skin to adhere to the wire, they had to keep breaking the skin when it attached itself—as it did occasionally. Then the nurse forced hydrogen peroxide down each pinhole to prevent infection. I could think of nothing worse to endure, and it happened every day.
That wasn’t all. Four times a day, every six hours, they’d take an Allen wrench and turn screws on the device. The idea was that this would stretch the ends of the bones inside the leg and eventually cause the growing bone to replace the missing bone. The turn hurt beyond description, even though each turn was very slight, less than half a millimeter. It didn’t matter whether it was day or night, every six hours someone came into my room to turn the screws.
As a pastor, I had visited many hospital rooms, including trips to the ICU. I had seen agony on many faces, and I had frequently winced in sympathy. Even so, I couldn’t imagine anything on a day-to-day basis that could be more painful.
Perhaps the worst part for me was that I never slept. For eleven and a half months I never went to sleep—I just passed out. Even with megadoses of morphine, I was never pain free. When they decided it was time for me to go to sleep, a nurse injected me with three or four shots of either morphine or another sleeping medicine. I’d lie in bed, and no matter how much I told myself to relax, I couldn’t. I fought the pain and then, apparently, I passed out. My next conscious moment would be an awareness of intense pain. I felt nothing else in between.
Eventually, family members and even hospital personnel left me alone because they knew I didn’t have a functioning body clock. I had no sense of time, and I couldn’t relax, because I was under such tension. If I made the slightest effort to move, a wire embedded in my flesh would tear my skin at the point of entry. I could move, but the wires didn’t. With even the tiniest movement, excruciating pain slashed through my entire body.
After a while, I learned to live with that situation, but I never got used to it.
The first person I “met” (we never saw each other in person) for whom the Ilizarov frame was used for its original purpose was Christy. The Ilizarov procedure was created to lengthen bones for people born with congenital birth defects. However, the device could not be attached until the bones had stopped growing. Especially during adolescence, bones grow at a very rapid pace, so doctors must carefully choose the right time for the procedure.
Christy, a teenage girl, was in the room next to mine. She had been born with one leg shorter than the other. Once her bones had matured, she had chosen surgery to attach the Ilizarov frame to have her bones lengthened so that both legs would be of normal size.
Because Christy’s surgery was elective, she had some idea about the pain and the length of recovery she would have to go through. For months, she had gone through extensive counseling, and her family knew how to take care of the wounds. They also knew approximately how long it would take and the commitment they had to make to care for her.
The difference between Christy and me was that she knew what she was getting into—at least to the extent that anyone can. I woke up with the device already attached. In my depressed state, that made me feel even worse. Even though I knew they had put the Ilizarov frame on me to save my leg, I could only see it as the major source of my agony.
Another problem arose, although a minor one. Even though we had different doctors, the same staff people came into Christy’s room and mine to turn the screws. Sometimes the wrenches got misplaced, and the attendant couldn’t find them in my room so they’d rush over to Christy’s for hers. Or they’d come and borrow mine. Fortunately for both of us, our fixators were interchangeable and someone could borrow wrenches from one room to adjust screws in the other room.
That’s how I first learned about Christy—the borrowing of wrenches. We never saw each other face-to-face, but we did see each other’s doctor, and somehow that, plus our common problem, created a bond between us.
Christy and I shared something else—pain. Many times I heard her crying. I don’t mean weeping, but a cry, or a scream, and sometimes just a low moan. She probably heard similar sounds from my room as well. I wasn’t as likely to cry because that’s not my nature. One of the nurses suggested it might be better if I did let go and scream. Even though she may have been right, I never did—at least not consciously.
When I was in control of my faculties, I never cried out. I had heard others scream from their pain and their cries disturbed me greatly. Also, I had learned to keep my hurts and emotions to myself. I believed at that time that moans, wails, and screams did no good. The only times I screamed, I was either unconscious or heavily medicated. I learned about those outbursts because other people told me.
Although Christy and I never met during the twelve weeks we lived next door to each other, we corresponded by sending letters back and forth, and the nurses willingly acted as our mail carriers.
I tried to encourage Christy. She told me her story and was very sympathetic to my accident. She was also a believer. We corresponded on that level as well.
In some of my worst moments of self-pity, however, I would think that when all the pain was over, Christy would be a normal young woman; I would never be normal again. She could play and run and do everything a normal teen did. Even then I knew I would never run again.
I had many, many times of self-pity, reminding myself that she chose her pain, while I had no warning and no options. She knew in advance what she was getting into; I had no idea. She was doing something that positively impacted the rest of her life; I was doing something just to save my life. Yes, self-pity filled my mind many, many days.
Always, however, I came back to one thing: God had chosen to keep me alive. Even in my worst moments of depression and self-pity, I never forgot that.
Christy and I shared similar pain. We also shared a faith that reminded us that our loving God was with us in the most terrible moments of suffering. Just having her in the next room comforted me, because I’d think,
I’m not the only one; somebody else understands how I feel.
That’s when I began to think of being part of an exclusive fraternity. In the years since my release, I’ve met other members of this reluctant and small fellowship. Because I knew what it felt like to suffer, I could understand their pain, just as Christy had felt mine and I had understood hers.
More than enduring, eventually I was able to do something doctors said I would never be able to do: I learned to walk again. I can stand on my own feet, put one foot in front of the other, and move.
They had warned me that because of the broken knee in my right leg, and the loss of the femur in my left (even with a replaced-and-stretched bone in place), I would not walk again, and if I did, I would be wearing heavy braces. More than once, I came close to losing my left leg, but somehow God took me through each crisis.
Therapy began on my arm about four weeks after the initial operation and on my legs two weeks after that.
About the same time, they put me in what I referred to as a Frankenstein bed. They strapped me to a large board and turned the bed so that my feet were on the floor and I was in a standing position, although still strapped to the bed. Two physical therapists placed a large belt around my waist and walked on either side of me. My legs had atrophied and grown extremely weak, so they helped me take my first steps. It took me days to learn to stand again so that I could put weight on my own legs. My equilibrium had changed because I had grown used to a horizontal position. I became incredibly nauseous each time they raised me into a vertical position. Days passed before I was used to that position enough to take my first step.