Read Riding the Bus With My Sister: A True Life Journey Online
Authors: Rachel Simon
Tags: #Handicapped, #Bus lines, #Social Science, #Reference, #Pennsylvania, #20th Century, #Authors; American, #General, #Literary, #Family & Relationships, #Personal Memoirs, #People with disabilities, #Sisters, #Interpersonal Relations, #Biography & Autobiography, #Family Relationships, #People with mental disabilities, #Biography
"
Look," I say, "you want to see how to put the needle on the record? It's not hard.
"
I put the tone arm in her hand. She grabs it as if it were a banister railing.
I say, "Lighter. Think of it like a tiny bird. You have to be gentle
."
Her fingers do a little ripple, but her grip stays the same.
"
Lighter," I say.
"Iz
lighter.
"
I sigh, and steer her rock of a hand to the vinyl. It'll start spinning when I make the tone arm cross a certain spot, and here we go, the record's cranking up into its regular revolutions. "Now we're going to set the needle down," I say.
Gradually, I lower our hands to the wheeling record. Beth's tongue is out in concentration.
"
Now, let it touch down soft.
"
She jams the needle down like an ice pick, so hard the record stops spinning.
"Beth,"
I say in that edgy tone I've had with her lately. She is too slow for me, that's what this little whisper in my head keeps saying. Though sometimes I wonder if it's just that my patience with her is getting too short.
"
I didn't
mean
to.
"
"
I hope you didn't break it," I say, pulling our hands off.
But then a funny thing happens. As soon as the needle's free, the record starts moving again. The music comes on in that muddy way it does when the speed's wrong, but then it gets faster and faster until the record starts playing normally.
"
See?" Beth says. "Iz all right." Donny Osmond comes on and she leans back on the bed and starts singing along, "One bad apple don't spoil the whole lunch, girl.
"
I like it when she sings. She knows the tunes just fine but gets the words all wrong, and that makes us laugh, and then it makes her laugh.
I like helping her fix up her new room. We've moved again, to a two-story house on a lake in a farming part of New Jersey. Laura and I sleep in the attic bedrooms. Beth and Max and Mom sleep in the first-floor bedrooms. Beth's room is orange, thanks to me, because orange just became her favorite color, so I went to a store with Mom and got the most electric orange they had and painted Beth's walls for her. Then we pinned up posters of Donny Osmond—and David Cassidy, the Jackson 5, and Bobby Sherman. All her faves. She sees them in
Tiger Beat.
We got her a subscription for her birthday.
I like that she can read now. She reads picture books and
TV Guide.
She writes, too, and keeps notebooks listing every card, record, and knickknack she receives, all of it in orange marker, all in chronological order.
I like that Mom takes us to the library together. I pick up books like
A Wrinkle in Time
and
The Hobbit
and
War of the Worlds.
Beth gets
Make Way for Ducklings.
I sneak a look at hers when I've had enough of mine.
But I don't like it all. I don't like when we go to the lake across the street and she stays in the kids' swimming area. I don't like when she goes through my bookcase and finds the spelling book I've been saving since second grade, with stickers for all my 100s on every page, and she uses it like a coloring book. I cry when I find it. Mom says Beth didn't know it was important, I should be understanding, but now my prized book is ruined forever and I throw it away.
I don't like being bored by her puzzles. I don't like being bored by her music. I don't like telling her, No, I don't want to do that or that or that. I don't like that she doesn't get that I'm too old to play with her anymore.
But most of all, I don't like the way I feel when I'm walking down the hall at school around lunchtime, sticking to the walk-to-the-right rule along with a thousand other kids in their blue jeans and flannel shirts streaming to their next class, and the hall reeks of Herbal Essence shampoo and Clearasil and dirty bell-bottoms and Marlboros and pea coat wool, and all you hear is hollers and titters and grumbles echoing off the lockers, and everyone's secretly judging everyone else, and I'm staring straight ahead so no one picks on me, and ahead of me a wave of quiet starts rolling through the teenagers on my side of the hall and I know what this means. It means that when I get a few lockers closer I'll see the two special ed classes, the Trainable and the Educable, ambling on the left side of the hall toward lunch. I know that if I were to stand on my toes to peer over all the varsity shoulders and shag haircuts, I'd see that the cheerleaders from my history class would be gazing at their feet, and the Black Sabbath fans from my home ec class would be looking over with curiosity, and the chess club boys from English would be offering a quick look of pity, and the jocks from algebra would be jostling one another with guffaws. But I just let the flow take me forward and then the two special ed groups come into view on the left, nine or ten people in each, walking out of step with us and one another. The Trainable students are in front. Led by their teacher, they grin and slouch, peering out at us with a kind of amazement in their eyes, as if they're surprised to see us. Then come the Educable students. I scan the bodies. There's Beth's school friend Billy in the striped shirt. She has milk and cookies with him. And there's Beth beside him, lumbering forward in her orange stretch pants and pink top, her frizzy hair almost the way Mom combed it this morning. We're a few feet from each other now, but she doesn't see me—no one in her class does. They're marching with their eyes on one another, but not giggling like my friends and I would. Instead, they look uncomfortable and walk in silence, as if they suspect they're being watched. And they
are
being watched: the teenagers around me are all quiet now, and walking stiffer and faster. To them, Beth's class is
different.
And they don't mean it in a nice way.
Then Beth and I see each other. I give a low-key wave, and she gives me a faint smile back. I hate how I feel then. Like yelling, "Hi, Beth!" real loud, so everyone who knows me will spin around to see her and understand that these two separate worlds aren't two separate worlds at all. But once again, as we pass each other, our shoulders almost touching, I don't yell anything. Instead I let myself be pressed along with the herd. A burn rises up in my throat, but I don't speak. I go into class and swallow my disloyalty and just feel disgusted for us all.
I hear the words people use.
I like words. At night I go up to my room, and after I've called my friends, I write lists of words as I hang out under this big blue clear plastic peace sign that I won at a county fair. It hangs from the sloped ceiling above my bed, and I put on the Who's
Tommy,
which Dad gave me during our last visit, and half lie down on my bed, and twirl the peace sign with my foot while the record sings, "Deaf, dumb, and blind boy, he's in a quiet vibration land." Then, on my bed, I write lists of words. I have pages of almost-synonyms in the back of my notebook:
PIG OUT, GORGE, WOLF, CHOW DOWN, CRAM IT IN, STUFF YOUR FACE, LICK THE PLATTER CLEAN
wonderland, narnia, lilliput, oz, shangri-la, never-never land backside, ass, bum, butt, tushie, tuffet, derriere, can, rump, rear end
But there's one kind of word I never write down. Kids in the halls at school use it, and teachers who talk about John Steinbeck's
Of Mice and Men.
I don't need to write it because it bangs around every day in my head:
DIMWIT, HALF-WIT, SIMPLETON, IDIOT, REJECT, SPAZZ, IMBECILE, GALOOT, MORON, DEFECTIVE
And especially:
RETARD
They'll say these like it's nothing. Teachers will say, "Obviously in the childlike actions taken by the innocent half-wit Lennie, you can see Steinbeck's extraordinary literary blah blah blah," and you're supposed to go along. I go along because what else can you do?
But I can't go along when kids bungle a book report and smack their heads and say, "I'm such a retard." Or when someone messes up on the parallel bars in gym, and on the mats below someone else calls out, "What a retard.
"
You're supposed to agree that, yes, that would be as bad as getting thrown out of the human race. You're supposed to laugh.
I never laugh. I just stare sharply and say, "My sister's retarded.
"
"
Oh, sorry, I didn't mean it," they come back.
They look away from me in the classroom after that, sometimes with their noses up, sometimes with their heads down. Either way is fine with me.
SMACK, POW, PUNCH, SOCK, BELT, BONK, BASH, BOX, WHAM
Then I flip the notebook to the front and go back to writing. If "kike" and "spic" and "nigger" are bad words, why not "retard"? What makes that one okay when all the rest get you sent to detention? I give my peace sign a good, hard kick.
We don't play together anymore, but Beth still wants to. I make excuses, which is easy because I have lots of friends. I can do headstands in Susan's yard. I can make is-your-refrigerator-running? prank phone calls with Marie. I can look at fashion magazines with David, or figure out the lyrics to "You Can't Always Get What You Want" with Keiko. Or I can just sit on the bed with any of them, and we can gossip and eat chips and laugh our heads off until their mothers call out, "Will you please keep it down?" and then we can laugh some more.
Sometimes when my friends aren't home, I boss Beth around. I know she wants to please me, so it's hard to fight the urge. "Get me a glass of water," I'll tell her when I'm in the living room watching
The 4:30 Movie
on Channel 7 and I'm in a bad mood that's come out of nowhere, as it does lately. "Get it!
"
She'll slink off to the kitchen to do my bidding, but glare at me every step of the way.
Yet she keeps trying. She says hi to my friends when they come over. She gets the mail every day and delivers it to me, telling me I got a letter from Kim, or my new issue of
Rolling Stone.
She'll draw pictures and give them to me.
A winter day. We are watching TV, and
The 4:30 Movie
has just ended, and Beth wants to turn to
Gilligan's Island.
"
I want to see the news," I say.
"
Don't want news.
"
"
Just for a few minutes. We'll leave it on Channel 7 until the weather.
"
But the real reason I want to see the news isn't the weather or the news, which is always about the war in Vietnam anyway. I want to see the great-looking reporter they have on Channel 7, this guy my friend Leslie has a crush on. His name is Geraldo Rivera, and all afternoon there were commercials saying he'd be doing some special report on Willowbrook at six o'clock. We go shopping at the Willowbrook Mall, and I want to watch him go shopping so I can tell Leslie about it the next day.
Beth sits next to me, and the news starts. Geraldo comes on, but he's not in a mall. He's in a big, dark place where people are crying and naked, and some of the people look beat-up, and the rooms are all bare, and the walls are covered with icky stuff—
"
Thiz gross," Beth says.
I don't know what it is, but it gives me shivers. I get up quick to change the channel, and just as I reach for it, a man with Geraldo says, "This is the Willowbrook State School.
"
I flick that channel and sit back down. It's the Gilligan episode where astronauts land on the island, and Beth falls into it, glued, while I wonder what I just saw. It couldn't be about anyone I know, nothing on the news ever is. But one face had an expression that Beth sometimes wears, and I shoot a look at her and wonder: Was this one of those institutions? The places where we didn't send Beth, and thank God we never will, ever ever ever?
It can't be, I tell myself. It's just too ... it's too
not human.
It's as far away from me and Beth as Vietnam. I won't think about it. I won't.
But mostly, Beth tries to spend time with me, and I say no.
"
No, I don't want to watch
Adam-12.
I don't want to sing to your dolls.
"
She gets a hurt look. "Call your own friends," I say. But her few school friends live too far away for her to reach with her oversized tricycle, which sits rusting in the garage. Or they have physical disabilities and can't get to our house without their parents help. Beth is stuck, because there are no trains or subways or buses around here. And, as she puts it, she's
bawd.
"
Dominoes?" she asks.
"
No.
"
"
Go Fish?
"
"
No!
"
"
But we're twins
!"
"
Only one month a year.
"
She slumps off to her orange room, and I climb upstairs to my peace sign.
***