The Fault in Our Stars (8 page)

I was kidding, Hazel Grace. I understand. (But we both know that okay is a very flirty word. Okay is BURSTING with sensuality.)

I was very tempted to respond
Okay
again, but I pictured him at my funeral, and that helped me text properly.

Sorry.

*  *  *

I tried to go to sleep with my headphones still on, but then after a while my mom and dad came in, and my mom grabbed Bluie from the shelf and hugged him to her stomach, and my dad sat down in my desk chair, and without crying he said, “You are not a grenade, not to us. Thinking about you dying makes us sad, Hazel, but you are not a grenade. You are amazing. You can’t know, sweetie, because you’ve never had a baby become a brilliant young reader with a side interest in horrible television shows, but the joy you bring us is so much greater than the sadness we feel about your illness.”

“Okay,” I said.

“Really,” my dad said. “I wouldn’t bullshit you about this. If you were more trouble than you’re worth, we’d just toss you out on the streets.”

“We’re not sentimental people,” Mom added, deadpan. “We’d leave you at an orphanage with a note pinned to your pajamas.”

I laughed.

“You don’t have to go to Support Group,” Mom added. “You don’t have to do anything. Except go to school.” She handed me the bear.

“I think Bluie can sleep on the shelf tonight,” I said. “Let me remind you that I am more than thirty-three half years old.”

“Keep him tonight,” she said.

“Mom,” I said.

“He’s
lonely
,” she said.

“Oh, my God, Mom,” I said. But I took stupid Bluie and kind of cuddled with him as I fell asleep.

I still had one arm draped over Bluie, in fact, when I awoke just after four in the morning with an apocalyptic pain fingering out from the unreachable center of my head.

CHAPTER SEVEN

I
screamed to wake up my parents, and they burst into the room, but there was nothing they could do to dim the supernovae exploding inside my brain, an endless chain of intracranial firecrackers that made me think that I was once and for all going, and I told myself—as I’ve told myself before—that the body shuts down when the pain gets too bad, that consciousness is temporary, that this will pass. But just like always, I didn’t slip away. I was left on the shore with the waves washing over me, unable to drown.

Dad drove, talking on the phone with the hospital, while I lay in the back with my head in Mom’s lap. There was nothing to do: Screaming made it worse. All stimuli made it worse, actually.

The only solution was to try to unmake the world, to make it black and silent and uninhabited again, to return to the moment before the Big Bang, in the beginning when there was the Word, and to live in that vacuous uncreated space alone with the Word.

People talk about the courage of cancer patients, and I do not deny that courage. I had been poked and stabbed and poisoned for years, and still I trod on. But make no mistake: In that moment, I would have been very, very happy to die.

I woke up in the ICU. I could tell I was in the ICU because I didn’t have my own room, and because there was so much beeping, and because I was alone: They don’t let your family stay with you 24/7 in the ICU at Children’s because it’s an infection risk. There was wailing down the hall. Somebody’s kid had died. I was alone. I hit the red call button.

A nurse came in seconds later. “Hi,” I said.

“Hello, Hazel. I’m Alison, your nurse,” she said.

“Hi, Alison My Nurse,” I said.

Whereupon I started to feel pretty tired again. But I woke up a bit when my parents came in, crying and kissing my face repeatedly, and I reached up for them and tried to squeeze, but my everything hurt when I squeezed, and Mom and Dad told me that I did not have a brain tumor, but that my headache was caused by poor oxygenation, which was caused by my lungs swimming in fluid, a liter and a half (!!!!) of which had been successfully drained from my chest, which was why I might feel a slight discomfort in my side, where there was,
hey look at that
, a tube that went from my chest into a plastic bladder half full of liquid that for all the world resembled my dad’s favorite amber ale. Mom told me I was going to go home, that I really was, that I would just have to get this drained every now and again and get back on the BiPAP, this nighttime machine that forces air in and out of my crap lungs. But I’d had a total body PET scan on the first night in the hospital, they told me, and the news was good: no tumor growth. No new tumors. My shoulder pain had been lack-of-oxygen pain. Heart-working-too-hard pain.

“Dr. Maria said this morning that she remains optimistic,” Dad said. I liked Dr. Maria, and she didn’t bullshit you, so that felt good to hear.

“This is just a thing, Hazel,” my mom said. “It’s a thing we can live with.”

I nodded, and then Alison My Nurse kind of politely made them leave. She asked me if I wanted some ice chips, and I nodded, and then she sat at the bed with me and spooned them into my mouth.

“So you’ve been gone a couple days,” Alison said. “Hmm, what’d you miss . . . A celebrity did drugs. Politicians disagreed. A different celebrity wore a bikini that revealed a bodily imperfection. A team won a sporting event, but another team lost.” I smiled. “You can’t go disappearing on everybody like this, Hazel. You miss too much.”

“More?” I asked, nodding toward the white Styrofoam cup in her hand.

“I shouldn’t,” she said, “but I’m a rebel.” She gave me another plastic spoonful of crushed ice. I mumbled a thank-you. Praise God for good nurses. “Getting tired?” she asked. I nodded. “Sleep for a while,” she said. “I’ll try to run interference and give you a couple hours before somebody comes in to check vitals and the like.” I said Thanks again. You say thanks a lot in a hospital. I tried to settle into the bed. “You’re not gonna ask about your boyfriend?” she asked.

“Don’t have one,” I told her.

“Well, there’s a kid who has hardly left the waiting room since you got here,” she said.

“He hasn’t seen me like this, has he?”

“No. Family only.”

I nodded and sank into an aqueous sleep.

It would take me six days to get home, six undays of staring at acoustic ceiling tile and watching television and sleeping and pain and wishing for time to pass. I did not see Augustus or anyone other than my parents. My hair looked like a bird’s nest; my shuffling gait like a dementia patient’s. I felt a little better each day, though: Each sleep ended to reveal a person who seemed a bit more like me. Sleep fights cancer, Regular Dr. Jim said for the thousandth time as he hovered over me one morning surrounded by a coterie of medical students.

“Then I am a cancer-fighting machine,” I told him.

“That you are, Hazel. Keep resting, and hopefully we’ll get you home soon.”

On Tuesday, they told me I’d go home on Wednesday. On Wednesday, two minimally supervised medical students removed my chest tube, which felt like getting stabbed in reverse and generally didn’t go very well, so they decided I’d have to stay until Thursday. I was beginning to think that I was the subject of some existentialist experiment in permanently delayed gratification when Dr. Maria showed up on Friday morning, sniffed around me for a minute, and told me I was good to go.

So Mom opened her oversize purse to reveal that she’d had my Go Home Clothes with her all along. A nurse came in and took out my IV. I felt untethered even though I still had the oxygen tank to carry around with me. I went into the bathroom, took my first shower in a week, got dressed, and when I got out, I was so tired I had to lie down and get my breath. Mom asked, “Do you want to see Augustus?”

“I guess,” I said after a minute. I stood up and shuffled over to one of the molded plastic chairs against the wall, tucking my tank beneath the chair. It wore me out.

Dad came back with Augustus a few minutes later. His hair was messy, sweeping down over his forehead. He lit up with a real Augustus Waters Goofy Smile when he saw me, and I couldn’t help but smile back. He sat down in the blue faux-leather recliner next to my chair. He leaned in toward me, seemingly incapable of stifling the smile.

Mom and Dad left us alone, which felt awkward. I worked hard to meet his eyes, even though they were the kind of pretty that’s hard to look at. “I missed you,” Augustus said.

My voice was smaller than I wanted it to be. “Thanks for not trying to see me when I looked like hell.”

“To be fair, you still look pretty bad.”

I laughed. “I missed you, too. I just don’t want you to see . . . all this. I just want, like . . . It doesn’t matter. You don’t always get what you want.”

“Is that so?” he asked. “I’d always thought the world was a wish-granting factory.”

“Turns out that is not the case,” I said. He was so beautiful. He reached for my hand but I shook my head. “No,” I said quietly. “If we’re gonna hang out, it has to be, like, not that.”

“Okay,” he said. “Well, I have good news and bad news on the wish-granting front.”

“Okay?” I said.

“The bad news is that we obviously can’t go to Amsterdam until you’re better. The Genies will, however, work their famous magic when you’re well enough.”

“That’s the good news?”

“No, the good news is that while you were sleeping, Peter Van Houten shared a bit more of his brilliant brain with us.”

He reached for my hand again, but this time to slip into it a heavily folded sheet of stationery on the letterhead of
Peter Van Houten, Novelist Emeritus
.

I didn’t read it until I got home, situated in my own huge and empty bed with no chance of medical interruption. It took me forever to decode Van Houten’s sloped, scratchy script.

Dear Mr. Waters,

I am in receipt of your electronic mail dated the 14th of April and duly impressed by the Shakespearean complexity of your tragedy. Everyone in this tale has a rock-solid
hamartia
: hers, that she is so sick; yours, that you are so well. Were she better or you sicker, then the stars would not be so terribly crossed, but it is the nature of stars to cross, and never was Shakespeare more wrong than when he had Cassius note, “The fault, dear Brutus, is not in our stars / But in ourselves.” Easy enough to say when you’re a Roman nobleman (or Shakespeare!), but there is no shortage of fault to be found amid our stars.

While we’re on the topic of old Will’s insufficiencies, your writing about young Hazel reminds me of the Bard’s Fifty-fifth sonnet, which of course begins, “Not marble, nor the gilded monuments / Of princes, shall outlive this powerful rhyme; / But you shall shine more bright in these contents / Than unswept stone, besmear’d with sluttish time.” (Off topic, but: What a slut time is. She screws everybody.) It’s a fine poem but a deceitful one: We do indeed remember Shakespeare’s powerful rhyme, but what do we remember about the person it commemorates? Nothing. We’re pretty sure he was male; everything else is guesswork. Shakespeare told us precious little of the man whom he entombed in his linguistic sarcophagus. (Witness also that when we talk about literature, we do so in the present tense. When we speak of the dead, we are not so kind.) You do not immortalize the lost by writing about them. Language buries, but does not resurrect. (Full disclosure: I am not the first to make this observation. cf, the MacLeish poem “Not Marble, Nor the Gilded Monuments,” which contains the heroic line “I shall say you will die and none will remember you.”)

I digress, but here’s the rub: The dead are visible only in the terrible lidless eye of memory. The living, thank heaven, retain the ability to surprise and to disappoint. Your Hazel is alive, Waters, and you mustn’t impose your will upon another’s decision, particularly a decision arrived at thoughtfully. She wishes to spare you pain, and you should let her. You may not find young Hazel’s logic persuasive, but I have trod through this vale of tears longer than you, and from where I’m sitting, she’s not the lunatic.

Yours truly,

Peter Van Houten

It was really written by him. I licked my finger and dabbed the paper and the ink bled a little, so I knew it was really real.

“Mom,” I said. I did not say it loudly, but I didn’t have to. She was always waiting. She peeked her head around the door.

“You okay, sweetie?”

“Can we call Dr. Maria and ask if international travel would kill me?”

CHAPTER EIGHT

W
e had a big Cancer Team Meeting a couple days later. Every so often, a bunch of doctors and social workers and physical therapists and whoever else got together around a big table in a conference room and discussed my situation. (Not the Augustus Waters situation or the Amsterdam situation. The cancer situation.)

Dr. Maria led the meeting. She hugged me when I got there. She was a hugger.

I felt a little better, I guess. Sleeping with the BiPAP all night made my lungs feel almost normal, although, then again, I did not really remember lung normality.

Everyone got there and made a big show of turning off their pagers and everything so it would be
all about me
, and then Dr. Maria said, “So the great news is that Phalanxifor continues to control your tumor growth, but obviously we’re still seeing serious problems with fluid accumulation. So the question is, how should we proceed?”

And then she just looked at me, like she was waiting for an answer. “Um,” I said, “I feel like I am not the most qualified person in the room to answer that question?”

She smiled. “Right, I was waiting for Dr. Simons. Dr. Simons?” He was another cancer doctor of some kind.

“Well, we know from other patients that most tumors eventually evolve a way to grow in spite of Phalanxifor, but if that were the case, we’d see tumor growth on the scans, which we don’t see. So it’s not that yet.”

Yet
, I thought.

Dr. Simons tapped at the table with his forefinger. “The thought around here is that it’s possible the Phalanxifor is worsening the edema, but we’d face far more serious problems if we discontinued its use.”

Dr. Maria added, “We don’t really understand the long-term effects of Phalanxifor. Very few people have been on it as long as you have.”

“So we’re gonna do nothing?”

“We’re going to stay the course,” Dr. Maria said, “but we’ll need to do more to keep that edema from building up.” I felt kind of sick for some reason, like I was going to throw up. I hated Cancer Team Meetings in general, but I hated this one in particular. “Your cancer is not going away, Hazel. But we’ve seen people live with your level of tumor penetration for a long time.” (I did not ask what constituted a long time. I’d made that mistake before.) “I know that coming out of the ICU, it doesn’t feel this way, but this fluid is, at least for the time being, manageable.”

“Can’t I just get like a lung transplant or something?” I asked.

Dr. Maria’s lips shrank into her mouth. “You would not be considered a strong candidate for a transplant, unfortunately,” she said. I understood: No use wasting good lungs on a hopeless case. I nodded, trying not to look like that comment hurt me. My dad started crying a little. I didn’t look over at him, but no one said anything for a long time, so his hiccuping cry was the only sound in the room.

I hated hurting him. Most of the time, I could forget about it, but the inexorable truth is this: They might be glad to have me around, but I was the alpha and the omega of my parents’ suffering.

Just before the Miracle, when I was in the ICU and it looked like I was going to die and Mom was telling me it was okay to let go, and I was trying to let go but my lungs kept searching for air, Mom sobbed something into Dad’s chest that I wish I hadn’t heard, and that I hope she never finds out that I did hear. She said, “I won’t be a mom anymore.” It gutted me pretty badly.

I couldn’t stop thinking about that during the whole Cancer Team Meeting. I couldn’t get it out of my head, how she sounded when she said that, like she would never be okay again, which probably she wouldn’t.

Anyway, eventually we decided to keep things the same only with more frequent fluid drainings. At the end, I asked if I could travel to Amsterdam, and Dr. Simons actually and literally laughed, but then Dr. Maria said, “Why not?” And Simons said, dubiously, “Why not?” And Dr. Maria said, “Yeah, I don’t see why not. They’ve got oxygen on the planes, after all.” Dr. Simons said, “Are they just going to gate-check a BiPAP?” And Maria said, “Yeah, or have one waiting for her.”

“Placing a patient—one of the most promising Phalanxifor survivors, no less—an eight-hour flight from the only physicians intimately familiar with her case? That’s a recipe for disaster.”

Dr. Maria shrugged. “It would increase some risks,” she acknowledged, but then turned to me and said, “But it’s your life.”

Except not really. On the car ride home, my parents agreed: I would not be going to Amsterdam unless and until there was medical agreement that it would be safe.

*  *  *

Augustus called that night after dinner. I was already in bed—after dinner had become my bedtime for the moment—propped up with a gajillion pillows and also Bluie, with my computer on my lap.

I picked up, saying, “Bad news,” and he said, “Shit, what?”

“I can’t go to Amsterdam. One of my doctors thinks it’s a bad idea.”

He was quiet for a second. “God,” he said. “I should’ve just paid for it myself. Should’ve just taken you straight from the
Funky Bones
to Amsterdam.”

“But then I would’ve had a probably fatal episode of deoxygenation in Amsterdam, and my body would have been shipped home in the cargo hold of an airplane,” I said.

“Well, yeah,” he said. “But before that, my grand romantic gesture would have totally gotten me laid.”

I laughed pretty hard, hard enough that I felt where the chest tube had been.

“You laugh because it’s true,” he said.

I laughed again.

“It’s true, isn’t it!”

“Probably not,” I said, and then after a moment added, “although you never know.”

He moaned in misery. “I’m gonna die a virgin,” he said.

“You’re a virgin?” I asked, surprised.

“Hazel Grace,” he said, “do you have a pen and a piece of paper?” I said I did. “Okay, please draw a circle.” I did. “Now draw a smaller circle within that circle.” I did. “The larger circle is virgins. The smaller circle is seventeen-year-old guys with one leg.”

I laughed again, and told him that having most of your social engagements occur at a children’s hospital also did not encourage promiscuity, and then we talked about Peter Van Houten’s amazingly brilliant comment about the sluttiness of time, and even though I was in bed and he was in his basement, it really felt like we were back in that uncreated third space, which was a place I really liked visiting with him.

Then I got off the phone and my mom and dad came into my room, and even though it was really not big enough for all three of us, they lay on either side of the bed with me and we all watched
ANTM
on the little TV in my room. This girl I didn’t like, Selena, got kicked off, which made me really happy for some reason. Then Mom hooked me up to the BiPAP and tucked me in, and Dad kissed me on the forehead, the kiss all stubble, and then I closed my eyes.

The BiPAP essentially took control of my breathing away from me, which was intensely annoying, but the great thing about it was that it made all this noise, rumbling with each inhalation and whirring as I exhaled. I kept thinking that it sounded like a dragon breathing in time with me, like I had this pet dragon who was cuddled up next to me and cared enough about me to time his breaths to mine. I was thinking about that as I sank into sleep.

I got up late the next morning. I watched TV in bed and checked my email and then after a while started crafting an email to Peter Van Houten about how I couldn’t come to Amsterdam but I swore upon the life of my mother that I would never share any information about the characters with anyone, that I didn’t even
want
to share it, because I was a terribly selfish person, and could he please just tell me if the Dutch Tulip Man is for real and if Anna’s mom marries him and also about Sisyphus the Hamster.

But I didn’t send it. It was too pathetic even for me.

Around three, when I figured Augustus would be home from school, I went into the backyard and called him. As the phone rang, I sat down on the grass, which was all overgrown and dandeliony. That swing set was still back there, weeds growing out of the little ditch I’d created from kicking myself higher as a little kid. I remembered Dad bringing home the kit from Toys “R” Us and building it in the backyard with a neighbor. He’d insisted on swinging on it first to test it, and the thing damn near broke.

The sky was gray and low and full of rain but not yet raining. I hung up when I got Augustus’s voice mail and then put the phone down in the dirt beside me and kept looking at the swing set, thinking that I would give up all the sick days I had left for a few healthy ones. I tried to tell myself that it could be worse, that the world was not a wish-granting factory, that I was living with cancer not dying of it, that I mustn’t let it kill me before it kills me, and then I just started muttering
stupid stupid stupid stupid stupid stupid
over and over again until the sound unhinged from its meaning. I was still saying it when he called back.

“Hi,” I said.

“Hazel Grace,” he said.

“Hi,” I said again.

“Are you crying, Hazel Grace?”

“Kind of?”

“Why?” he asked.

“’Cause I’m just—I want to go to Amsterdam, and I want him to tell me what happens after the book is over, and I just don’t want my particular life, and also the sky is depressing me, and there is this old swing set out here that my dad made for me when I was a kid.”

“I must see this old swing set of tears immediately,” he said. “I’ll be over in twenty minutes.”

I stayed in the backyard because Mom was always really smothery and concerned when I was crying, because I did not cry often, and I knew she’d want to
talk
and discuss whether I shouldn’t consider adjusting my medication, and the thought of that whole conversation made me want to throw up.

It’s not like I had some utterly poignant, well-lit memory of a healthy father pushing a healthy child and the child saying
higher higher higher
or some other metaphorically resonant moment. The swing set was just sitting there, abandoned, the two little swings hanging still and sad from a grayed plank of wood, the outline of the seats like a kid’s drawing of a smile.

Behind me, I heard the sliding-glass door open. I turned around. It was Augustus, wearing khaki pants and a short-sleeve plaid button-down. I wiped my face with my sleeve and smiled. “Hi,” I said.

It took him a second to sit down on the ground next to me, and he grimaced as he landed rather ungracefully on his ass. “Hi,” he said finally. I looked over at him. He was looking past me, into the backyard. “I see your point,” he said as he put an arm around my shoulder. “That is one sad goddamned swing set.”

I nudged my head into his shoulder. “Thanks for offering to come over.”

“You realize that trying to keep your distance from me will not lessen my affection for you,” he said.

“I guess?” I said.

“All efforts to save me from you will fail,” he said.

“Why? Why would you even like me? Haven’t you put yourself through enough of this?” I asked, thinking of Caroline Mathers.

Gus didn’t answer. He just held on to me, his fingers strong against my left arm. “We gotta do something about this frigging swing set,” he said. “I’m telling you, it’s ninety percent of the problem.”

Once I’d recovered, we went inside and sat down on the couch right next to each other, the laptop half on his (fake) knee and half on mine. “Hot,” I said of the laptop’s base.

“Is it now?” He smiled. Gus loaded this giveaway site called Free No Catch and together we wrote an ad.

“Headline?” he asked.

“‘Swing Set Needs Home,’” I said.

“‘Desperately Lonely Swing Set Needs Loving Home,’” he said.

“‘Lonely, Vaguely Pedophilic Swing Set Seeks the Butts of Children,’” I said.

He laughed. “That’s why.”

“What?”

“That’s why I like you. Do you realize how rare it is to come across a hot girl who creates an adjectival version of the word
pedophile
? You are so busy being you that you have no idea how utterly unprecedented you are.”

I took a deep breath through my nose. There was never enough air in the world, but the shortage was particularly acute in that moment.

We wrote the ad together, editing each other as we went. In the end, we settled upon this:

Desperately Lonely Swing Set Needs Loving Home

One swing set, well worn but structurally sound, seeks new home. Make memories with your kid or kids so that someday he or she or they will look into the backyard and feel the ache of sentimentality as desperately as I did this afternoon. It’s all fragile and fleeting, dear reader, but with this swing set, your child(ren) will be introduced to the ups and downs of human life gently and safely, and may also learn the most important lesson of all: No matter how hard you kick, no matter how high you get, you can’t go all the way around.

Swing set currently resides near 83rd and Spring Mill.

After that, we turned on the TV for a little while, but we couldn’t find anything to watch, so I grabbed
An Imperial Affliction
off the bedside table and brought it back into the living room and Augustus Waters read to me while Mom, making lunch, listened in.

“‘Mother’s glass eye turned inward,’”
Augustus began. As he read, I fell in love the way you fall asleep: slowly, and then all at once.

When I checked my email an hour later, I learned that we had plenty of swing-set suitors to choose from. In the end, we picked a guy named Daniel Alvarez who’d included a picture of his three kids playing video games with the subject line
I just want them to go outside
. I emailed him back and told him to pick it up at his leisure.

Augustus asked if I wanted to go with him to Support Group, but I was really tired from my busy day of Having Cancer, so I passed. We were sitting there on the couch together, and he pushed himself up to go but then fell back down onto the couch and sneaked a kiss onto my cheek.