12 Rules for Life: An Antidote to Chaos (50 page)

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Disintegration and Pain

Mikhaila stayed awake many nights when she was in pain. When her grandfather came to visit, he gave her a few of his Tylenol 3s, which contain codeine. Then she could sleep. But not for long. Our rheumatologist, instrumental in producing Mikhaila’s remission, hit the limit of her courage when dealing with our child’s pain. She had once prescribed opiates to a young girl, who became addicted. She swore never to do so again. She said, “Have you tried ibuprofen?” Mikhaila learned then that doctors don’t know everything. Ibuprofen for her was a crumb of bread for a starving man.

We talked to a new doctor. He listened carefully. Then he helped Mikhaila. First, he prescribed T3s, the same medication her grandfather had briefly shared. This was brave. Physicians face a lot of pressure to avoid the prescription of opiates—not least to children. But opiates
work
. Soon, however, the Tylenol was insufficient. She started taking oxycontin, an opioid known pejoratively as hillbilly heroin. This controlled her pain, but produced other problems. Tammy took Mikhaila out for lunch a week after the prescription started. She could have been drunk. Her speech was slurred. Her head nodded. This was not good.

My sister-in-law is a palliative care nurse. She thought we could add Ritalin, an amphetamine often used for hyperactive kids, to the oxycontin. The Ritalin restored Mikhaila’s alertness and had some pain-suppressing qualities of its own (this is a very a good thing to know if you are ever faced with someone’s intractable suffering). But her pain became increasingly excruciating. She started to fall. Then her hip seized up on her again, this time in the subway on a day when the escalator was not working. Her boyfriend carried her up the stairs. She took a cab home. The subway was no longer a reliable form of transportation. That March we bought Mikhaila a 50cc motor scooter. It was dangerous to let her ride it. It was also dangerous for her to lack all freedom. We chose the former danger. She passed her learner’s exam, which allowed her to pilot the vehicle during the day. She was given a few months to progress towards her permanent licence.

In May her hip was replaced. The surgeon was even able to adjust for a pre-existent half centimetre difference in leg length. The bone hadn’t died, either. That was only a shadow on the x-ray. Her aunt and her grandparents came to see her. We had some better days. Immediately after the surgery, however, Mikhaila was placed in an adult rehabilitation centre. She was the youngest person in the place, by about sixty years. Her aged roommate, very neurotic, wouldn’t allow the lights to be off, even at night. The old woman couldn’t make it to the toilet and had to use a bedpan. She couldn’t stand to have the door to her room closed. But it was right beside the nurses’ station, with its continual alarm bells and loud conversations. There was no sleeping there, where sleeping was required. No visitors were allowed after 7 p.m. The physio—the very reason for her placement—was on vacation. The only person who helped her was the janitor, who volunteered to move her to a multi-bed ward when she told the on-duty nurse that she couldn’t sleep. This was the same nurse who had laughed when she’d found out which room Mikhaila had been assigned to.

She was supposed to be there for six weeks. She was there three days. When the vacationing physio returned, Mikhaila climbed the rehab-centre stairs and immediately mastered her additional required exercises. While she was doing that, we outfitted our home with the necessary handrails. Then we took her home. All that pain and surgery—she handled that fine. The appalling rehab centre? That produced post-traumatic stress symptoms.

Mikhaila enrolled in a full-fledged motorcycle course in June, so she could continue legally using her scooter. We were all terrified by this necessity. What if she fell? What if she had an accident? On the first day, Mikhaila trained on a real motorcycle. It was heavy. She dropped it several times. She saw another beginning rider tumble and roll across the parking lot where the course was held. On the morning of the second day of the course, she was afraid to return. She didn’t want to leave her bed. We talked for a good while, and jointly decided that she should at least drive back with Tammy to the site where the training took place. If she couldn’t manage it, she could stay in the car until the course finished. En route, her courage returned. When she
received her certificate, everyone else enrolled stood and applauded.

Then her right ankle disintegrated. Her doctors wanted to fuse the large affected bones into one piece. But that would have caused the other, smaller bones in her foot—now facing additional pressure—to deteriorate. That’s not so intolerable, perhaps, when you’re eighty (although it’s no picnic then either). But it’s no solution when you’re in your teens. We insisted upon an artificial replacement, although the technology was new. There was a three year-waiting list. This was simply not manageable. The damaged ankle produced much more pain than her previously failing hip. One bad night she became erratic and illogical. I couldn’t calm her down. I knew she was at her breaking point. To call that stressful is to say almost nothing.

We spent weeks and then months desperately investigating all sorts of replacement devices, trying to assess their suitability. We looked everywhere for quicker surgery: India, China, Spain, the UK, Costa Rica, Florida. We contacted the Ontario Provincial Ministry of Health. They were very helpful. They located a specialist across the country, in Vancouver. Mikhaila’s ankle was replaced in November. Post-surgery, she was in absolute agony. Her foot was mispositioned. The cast was compressing skin against bone. The clinic was unwilling to give her enough oxycontin to control her pain. She had built up a high level of tolerance because of her previous use.

When she returned home, in less pain, Mikhaila started to taper off the opiates. She hated oxycontin, despite its evident utility. She said it turned her life grey. Perhaps that was a good thing, under the circumstances. She stopped using it as soon as possible. She suffered through withdrawal for months, with night sweating and formication (the sensation of ants crawling upside down under her skin). She became unable to experience any pleasure. That was another effect of opiate withdrawal.

During much of this period, we were overwhelmed. The demands of everyday life don’t stop, just because you have been laid low by a catastrophe. Everything that you always do still has to be done. So how do you manage? Here are some things we learned:

Set aside some time to talk and to think about the illness or other
crisis and how it should be managed every day.
Do not
talk or think about it otherwise. If you do not limit its effect, you will become exhausted, and everything will spiral into the ground. This is not helpful. Conserve your strength. You’re in a war, not a battle, and a war is composed of many battles. You must stay functional through all of them. When worries associated with the crisis arise at other times, remind yourself that you will think them through, during the scheduled period. This usually works. The parts of your brain that generate anxiety are more interested in the fact that there is a plan than in the details of the plan. Don’t schedule your time to think in the evening or at night. Then you won’t be able to sleep. If you can’t sleep, then everything will go rapidly downhill.

Shift the unit of time you use to frame your life. When the sun is shining, and times are good, and the crops are bountiful, you can make your plans for the next month, and the next year, and the next five years. You can even dream a decade ahead. But you can’t do that when your leg is clamped firmly in a crocodile’s jaws. “Sufficient unto the day are the evils thereof”—that is Matthew 6:34. It is often interpreted as “live in the present, without a care for tomorrow.” This is not what it means. That injunction must be interpreted in the context of the Sermon on the Mount, of which it is an integral part. That sermon distills the ten “Thou-shalt-nots” of the Commandments of Moses into a single prescriptive “Thou shalt.” Christ enjoins His followers to place faith in God’s Heavenly Kingdom, and the truth. That’s a conscious decision to presume the primary goodness of Being. That’s an act of courage. Aim high, like Pinocchio’s Geppetto. Wish upon a star, and then act properly, in accordance with that aim. Once you are aligned with the heavens, you can concentrate on the day. Be careful. Put the things you can control in order. Repair what is in disorder, and make what is already good better. It is possible that you can manage, if you are careful. People are very tough. People can survive through much pain and loss. But to persevere they must see the good in Being. If they lose that, they are truly lost.

Dogs, Again—But Finally, Cats

Dogs are like people. They are the friends and allies of human beings. They are social, hierarchical, and domesticated. They are happy at the bottom of the family pyramid. They pay for the attention they receive with loyalty, admiration, and love. Dogs are great.

Cats, however, are their own creatures. They aren’t social or hierarchical (except in passing). They are only semi-domesticated. They don’t do tricks. They are friendly on their own terms. Dogs have been tamed, but cats have made a decision. They appear willing to interact with people, for some strange reasons of their own. To me, cats are a manifestation of nature, of Being, in an almost pure form. Furthermore, they are a form of Being that looks at human beings and approves.

When you meet a cat on a street, many things can happen. If I see a cat at a distance, for example, the evil part of me wants to startle it with a loud pfft! sound—front teeth over bottom lip. That will make a nervous cat puff up its fur and stand sideways so it looks larger. Maybe I shouldn’t laugh at cats, but it’s hard to resist. The fact that they can be startled is one of the best things about them (along with the fact that they are instantly disgruntled and embarrassed by their overreaction). But when I have myself under proper control, I’ll bend down, and call the cat over, so I can pet it. Sometimes, it will run away. Sometimes, it will ignore me completely, because it’s a cat. But sometimes the cat will come over to me, push its head against my waiting hand, and be pleased about it. Sometimes it will even roll over, and arch its back against the dusty concrete (although cats positioned in that manner will often bite and claw even a friendly hand).

Across the street on which I live is a cat named Ginger. Ginger is a Siamese, a beautiful cat, very calm and self-possessed. She is low in the Big Five personality trait of neuroticism, which is an index of anxiety, fear and emotional pain. Ginger is not at all bothered by dogs. Our dog, Sikko, is her friend. Sometimes when you call her—sometimes of her own accord—Ginger will trot across the street, tail held high, with a little kink at the end. Then she will roll on her back in front of Sikko, who wags his tail happily as a consequence. Afterward, if she feels like
it, she might come visit you, for a half a minute. It’s a nice break. It’s a little extra light, on a good day, and a tiny respite, on a bad day.

If you pay careful attention, even on a bad day, you may be fortunate enough to be confronted with small opportunities of just that sort. Maybe you will see a little girl dancing on the street because she is all dressed up in a ballet costume. Maybe you will have a particularly good cup of coffee in a café that cares about their customers. Maybe you can steal ten or twenty minutes to do some little ridiculous thing that distracts you or reminds you that you can laugh at the absurdity of existence. Personally, I like to watch a
Simpsons
episode at 1.5 times regular speed: all the laughs; two-thirds the time.

And maybe when you are going for a walk and your head is spinning a cat will show up and if you pay attention to it then you will get a reminder for just fifteen seconds that the wonder of Being might make up for the ineradicable suffering that accompanies it.

Pet a cat when you encounter one on the street.

P.S. Soon after I wrote this chapter, Mikhaila’s surgeon told her that her artificial ankle would have to be removed, and her ankle fused. Amputation waited down that road. She had been in pain for eight years, since the replacement surgery, and her mobility remained significantly impaired, although both were much better than before. Four days later she happened upon a new physiotherapist. He was a large, powerful, attentive person. He had specialized in ankle treatment in the UK, in London. He placed his hands around her ankle and compressed it for forty seconds, while Mikhaila moved her foot back and forth. A mispositioned bone slipped back where it belonged. Her pain disappeared. She never cries in front of medical personnel, but she burst into tears. Her knee straightened up. Now she can walk long distances, and traipse around in her bare feet. The calf muscle on her damaged leg is growing back. She has much more flexion in the artificial joint. This year, she got married and had a baby girl, Elizabeth, named after my wife’s departed mother.

Things are good.

For now.

Coda
WHAT SHALL I DO WITH MY NEWFOUND PEN OF LIGHT?

In late 2016 I travelled to northern California to meet a friend and business associate. We spent an evening together thinking and talking. At one point he took a pen from his jacket and took a few notes. It was LED-equipped and beamed light out its tip, so that writing in the dark was made easier. “Just another gadget,” I thought. Later, however, in a more metaphorical frame of mind, I was struck quite deeply by the idea of a pen of light. There was something symbolic about it, something metaphysical. We’re all in the dark, after all, much of the time. We could all use something written with light to guide us along our way. I told him I wanted to do some writing, while we sat and conversed, and I asked him if he would give me the pen, as a gift. When he handed it over, I found myself inordinately pleased. Now I could write illuminated words in the darkness! Obviously, it was important to do such a thing properly. So I said to myself, in all seriousness, “What shall I do with my newfound pen of light?” There are two verses in the New Testament that pertain to such things. I’ve thought about them a lot:

Ask, and it shall given to you; Seek, and ye shall find; Knock, and it shall be open unto you: For everyone who asks receives; the one who
seeks finds; and to the one who knocks, the door will be opened (Matthew 7:7-7:8)

At first glance, this seems like nothing but a testament to the magic of prayer, in the sense of entreating God to grant favours. But God, whatever or whoever He may be, is no simple granter of wishes. When tempted by the Devil himself, in the desert—as we saw in Rule 7 (Pursue what is meaningful [not what is expedient])—even Christ Himself was not willing to call upon his Father for a favour; furthermore, every day, the prayers of desperate people go unanswered. But maybe this is because the questions they contain are not phrased in the proper manner. Perhaps it’s not reasonable to ask God to break the rules of physics every time we fall by the wayside or make a serious error. Perhaps, in such times, you can’t put the cart before the horse and simply wish for your problem to be solved in some magical manner. Perhaps you could ask, instead, what you might have to do right now to increase your resolve, buttress your character, and find the strength to go on. Perhaps you could instead ask to see the truth.

On many occasions in our nearly thirty years of marriage my wife and I have had a disagreement—sometimes a deep disagreement. Our unity appeared to be broken, at some unknowably profound level, and we were not able to easily resolve the rupture by talking. We became trapped, instead, in emotional, angry and anxious argument. We agreed that when such circumstances arose we would separate, briefly: she to one room, me to another. This was often quite difficult, because it is hard to disengage in the heat of an argument, when anger generates the desire to defeat and win. But it seemed better than risking the consequences of a dispute that threatened to spiral out of control.

Alone, trying to calm down, we would each ask ourselves the same single question:
What had we each done to contribute to the situation we were arguing about? However small, however distant … we had each made some error.
Then we would reunite, and share the results of our questioning:
Here’s how I was wrong ….

The problem with asking yourself such a question is that you must truly want the answer. And the problem with doing that is that
you
won’t like the answer
. When you are arguing with someone, you want to be right, and you want the other person to be wrong. Then it’s them that has to sacrifice something and change, not you, and that’s much preferable. If it’s you that’s wrong and you that must change, then you have to reconsider yourself—your memories of the past, your manner of being in the present, and your plans for the future. Then you must resolve to improve and figure out how to do that. Then you actually have to do it. That’s exhausting. It takes repeated practice, to instantiate the new perceptions and make the new actions habitual. It’s much easier just not to realize, admit and engage. It’s much easier to turn your attention away from the truth and remain wilfully blind.

But it’s at such a point that you must decide whether you want to be right or you want to have peace.
216
You must decide whether to insist upon the absolute correctness of your view, or to listen and negotiate. You don’t get peace by being right. You just get to be right, while your partner gets to be wrong—defeated and wrong. Do that ten thousand times and your marriage will be over (or you will wish it was). To choose the alternative—to seek peace—you have to decide that you want the answer, more than you want to be right. That’s the way out of the prison of your stubborn preconceptions. That’s the prerequisite for negotiation. That’s to truly abide by principle of Rule 2 (Treat yourself like someone you are responsible for helping).

My wife and I learned that if you ask yourself such a question, and you genuinely desire the answer (no matter how disgraceful and terrible and shameful), then a memory of something you did that was stupid and wrong at some point in the generally not-distant-enough past will arise from the depths of your mind. Then you can go back to your partner and reveal why you’re an idiot, and apologize (sincerely) and that person can do the same for you, and then apologize (sincerely), and then you two idiots will be able to talk again. Perhaps that is true prayer: the question, “What have I done wrong, and what can I do now to set things at least a little bit more right?” But your heart must be open to the terrible truth. You must be receptive to that which you do not want to hear. When you decide to learn about your faults, so that they can be rectified, you open a line of communication with
the source of all revelatory thought. Maybe that’s the same thing as consulting your conscience. Maybe that’s the same thing, in some manner, as a discussion with God.

It was in that spirit, with some paper in front of me, that I asked my question:
What shall I do with my newfound pen of light?
I asked, as if I truly wanted the answer. I waited for a reply. I was holding a conversation between two different elements of myself. I was genuinely thinking—or listening, in the sense described in Rule 9 (Assume that the person you are listening to might know something you don’t). That rule can apply as much to yourself as to others. It was me, of course, who asked the question—and it was me, of course, who replied. But those two me’s were not the same. I did not know what the answer would be. I was waiting for it to appear in the theatre of my imagination. I was waiting for the words to spring out of the void. How can a person think up something that surprises him? How can he already not know what he thinks? Where do new thoughts come from? Who or what thinks them?

Since I had just been given, of all things, a Pen of Light, which could write Illuminated Words in the darkness, I wanted to do the best thing I could with it. So, I asked the appropriate question—and, almost immediately, an answer revealed itself:
Write down the words you want inscribed on your soul.
I wrote that down. That seemed pretty good—a little on the romantic side, granted—but that was in keeping with the game. Then I upped the ante. I decided to ask myself the hardest questions I could think up, and await their answers. If you have a Pen of Light, after all, you should use it to answer Difficult Questions. Here was the first:
What shall I do tomorrow?
The answer came:
The most good possible in the shortest period of time.
That was satisfying, as well—conjoining an ambitious aim with the demands of maximal efficiency. A worthy challenge. The second question was in the same vein:
What shall I do next year? Try to ensure that the good I do then will be exceeded only by the good I do the year after that.
That seemed solid, too—a nice extension of the ambitions detailed in the previous answer. I told my friend that I was trying a serious experiment in writing with the pen he had given to me. I asked if I could read aloud what I had composed
so far. The questions—and the answers—struck a chord with him, too. That was good. That was impetus to continue.

The next question ended the first set:
What shall I do with my life? Aim for Paradise, and concentrate on today.
Hah! I knew what that meant. It’s what Geppetto does in the Disney movie
Pinocchio,
when he wishes upon a star. The grandfatherly woodcarver lifts up his eyes to the twinkling diamond set high above the mundane world of day-to-day human concerns and articulates his deepest desire: that the marionette he created lose the strings by which he is manipulated by others and transform himself into a real boy. It’s also the central message of the Sermon on the Mount, as we saw in Rule 4 (Compare yourself to who you were yesterday …), but which deserve repeating here:

And why take ye thought for raiment? Consider the lilies of the field, how they grow; they toil not, neither do they spin: And yet I say unto you, That even Solomon in all his glory was not arrayed like one of these. Wherefore, if God so clothe the grass of the field, which to day is, and to morrow is cast into the oven, shall he not much more clothe you, O ye of little faith? Therefore take no thought, saying, What shall we eat? or, What shall we drink? or, Wherewithal shall we be clothed? For your heavenly Father knoweth that ye have need of all these things. But seek ye first the kingdom of God, and his righteousness; and all these things shall be added unto you (Matthew 6:28-6:33).

What does all that mean? Orient yourself properly. Then—and only then—concentrate on the day. Set your sights at the Good, the Beautiful, and the True, and then focus pointedly and carefully on the concerns of each moment. Aim continually at Heaven while you work diligently on Earth. Attend fully to the future, in that manner, while attending fully to the present. Then you have the best chance of perfecting both.

I turned, then, from the use of time to my relationships with people, and wrote down and then read these questions and answers to my friend:
What shall I do with my wife? Treat her as if she is the Holy Mother
of God, so that she may give birth to the world-redeeming hero. What shall I do with my daughter? Stand behind her, listen to her, guard her, train her mind, and let her know it’s OK if she wants to be a mother. What shall I do with my parents? Act such that your actions justify the suffering they endured. What shall I do with my son? Encourage him to be a true Son of God.

To honour your wife as a Mother of God
is to notice and support the sacred element of her role as mother (not just of your children, but as such). A society that forgets this cannot survive. Hitler’s mother gave birth to Hitler, and Stalin’s mother to Stalin. Was something amiss in their crucial relationships? It seems likely, given the importance of the maternal role in establishing trust
217
—to take a single vital example. Perhaps the importance of their motherly duties, and of their relationship with their children, was not properly stressed; perhaps what the women were doing in their maternal guise was not properly regarded by husband, father and society alike. Who instead might a woman produce if she was treated properly, honourably and carefully? After all, the fate of the world rests on each new infant—tiny, fragile and threatened but, in time, capable of uttering the words and doing the deeds that maintain the eternal, delicate balance between chaos and order.

To stand behind my daughter?
That’s to encourage her, in everything she wants courageously to do, but to include in that genuine appreciation for the fact of her femininity: to recognize the importance of having a family and children and to forego the temptation to denigrate or devalue that in comparison to accomplishment of personal ambition or career. It’s not for nothing that the Holy Mother and Infant is a divine image—as we just discussed. Societies that cease to honour that image—that cease to see that relationship as of transcendent and fundamental importance—also cease to be.

To act to justify the suffering of your parents
is to remember all the sacrifices that all the others who lived before you (not least your parents) have made for you in all the course of the terrible past, to be grateful for all the progress that has been thereby made, and then to act in accordance with that remembrance and gratitude. People sacrificed immensely to bring about what we have now. In many cases, they literally died for it—and we should act with some respect for that fact.

To encourage my son to be a true Son of God?
That is to want him above all
to do what is right
, and to strive to have his back while he is doing so. That is, I think, part of the sacrificial message: to value and support your son’s commitment to transcendent good above all things (including his worldly progress, so to speak, and his safety—and, perhaps, even his life).

I continued asking questions. The answers came within seconds.
What shall I do with the stranger? Invite him into my house, and treat him like a brother, so that he may become one.
That’s to extend the hand of trust to someone so that his or her best part can step forward and reciprocate. That’s to manifest the sacred hospitality that makes life between those who do not yet know each other possible.
What shall I do with a fallen soul? Offer a genuine and cautious hand, but do not join it in the mire.
That’s a good summary of what we covered in Rule 3 (Make friends with people who want the best for you). That’s an injunction to refrain both from casting pearls before swine, and from camouflaging your vice with virtue.
What shall I do with the world? Conduct myself as if Being is more valuable than Non-Being.
Act so that you are not made bitter and corrupt by the tragedy of existence. That’s the essence of Rule 1 (Stand up straight with your shoulders back): confront the uncertainty of the world voluntarily, and with faith and courage.

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