Promise Me (45 page)

SGK affiliate established in Italy; first international affiliate-hosted Komen Race for the Cure is held in Rome in May.

SGK establishes the Breast Health Advisory Council (BHAC), consisting of internationally recognized breast cancer experts.

For the first time in a single season, more than 1 million people cross the finish line in the SGK Race for the Cure Series.

2001

SGK volunteers total more than 75,000. FDA approves first digital mammography devices.

Male breast cancer survivor and honorary Team New Balance member Mark Goldstein participates in his 100th Komen Race for the Cure.

Representatives of SGK participate in an official White House roundtable discussion on breast cancer with President George W. Bush, Laura Bush, physicians, scientists, advocates, survivors, and members of the Bush administration.

Worth
magazine names Komen one of “America’s 100 Best Charities” out of more than 819,000 charities in the United
States. (Of twenty-seven health organizations named to the “100 Best” list, SGK was one of two solely focused on women’s health.)

2002

SGK commemorates twentieth anniversary.

2003

SGK celebrates the twentieth anniversary of the SGK Race for the Cure, a series of more than one hundred races around the world, the largest series of 5K runs/fitness walks in the world.

2004

With affiliate network, corporate partners, and generous donors, SGK has raised $750 million.

2006

More than forty SGK affiliates participate in Champions for the Cure, a grassroots program designed to educate Congress, the president, and other policy makers about breast cancer. More than 100,000 Americans become SGK eChampions on
ActNowEndBreastCancer.org
, a virtual advocacy forum.

2007

FDA approves raloxifene, used to reduce risk of invasive breast cancer in postmenopausal women.

SGK marks 25th anniversary, changes name to Susan G. Komen for the Cure; the “running ribbon” logo adopted to symbolize energy and forward momentum.

SGK reaches milestone of $1 billion invested in the breast cancer movement and pledges to invest another $2 billion in the next decade.

SGK Community Challenge launches twenty-five-city campaign to rally leaders around the country to put breast cancer back at the top of the national agenda.

SGK launches first-ever Global Advocate Summit, connecting delegates from the United States and thirty other countries to discuss the global state of breast cancer.

SGK establishes its Scientific Advisory Board, a small group of top-level scientific and medical advisers led by Dr. Eric P. Winer.

SGK changes grants process to focus on four categories: Promise Grants, Investigator-Initiated Research Grants, Career Catalyst Research Grants, and Postdoctoral Fellowships.

First-ever
State of Breast Cancer
report discusses the breast cancer movement in lay terms.

2008

FDA approves Avastin (bevacizumab) for treatment of metastatic breast cancer.

SGK Course for the Cure first utilized to train advocates from nine pilot countries as part of SGK’s Global Initiative for Breast Cancer.

Global Promise Fund established, allowing donors to contribute specifically to Komen’s global work.

SGK celebrates $100 million awarded in research grants, the largest single-year investment in research in the organization’s twenty-six-year history.

2009

SGK grantee Elizabeth Blackburn, Ph.D., receives Nobel Prize for discovery of telomerase.

Nancy G. Brinker receives Presidential Medal of Freedom and is made United Nations Goodwill Ambassador, overseeing Cancer Control for World Health Organization.

SGK Tissue Bank established at the Indiana University’s Simon Cancer Center.

SGK sponsors major international breast cancer conference in Egypt. Pyramids at Giza illuminated in pink for Egypt’s first SGK Race for the Cure.

2010

Having invested over $1.5 billion in research, services, and advocacy, Susan G. Komen for the Cure brings together millions of volunteers around the world, continuing the fight to end breast cancer forever.

1-877 GO KOMEN (1-877-465-6636) is the resource for any and all things relating to breast health, breast cancer, and Susan G. Komen for the Cure. On the web, log on to
www.komen.org
.

HELP WITH CLINICAL TRIALS
Susan G. Komen for the Cure has a strategic relationship with
BreastCancerTrials.org
, which operates as a program of QuantumLeap Healthcare Collaborative, a nonprofit corporation. This site educates patients and families on clinical trial advantages and procedures and offers a trial matching service that helps patients locate trials in which they may want to participate.
   
https://www.BreastCancerTrials.org
.

RISK FACTORS AND PREVENTION
Facing Our Risk of Cancer Empowered (FORCE)
Information for people at higher risk of breast cancer.
   
http://www.facingourrisk.org

National Cancer Institute (NCI)—Breast Cancer Risk Assessment Tool
Interactive breast cancer risk assessment tool.
   
http://bcra.nci.nih.gov/brc/q1.htm

National Cancer Institute (NCI)—Genetic Testing
Information on genetic testing.
   
http://www.cancer.gov/cancertopics/factsheet/Risk/BRCA

National Cancer Institute (NCI)—Genetics of Breast and Ovarian Cancer
Information on the genetics of breast and ovarian cancer.
   
http://www.cancer.gov/cancerinfo/pdq/genetics/breast-and-ovarian

National Institutes of Health (NIH)
Information on clinical trials recruiting people with BRCA or other genetic mutations.
   
http://clinicaltrials.gov

State Cancer Legislative Database Program
Information on state legislation requiring coverage for prophylactic mastectomy.
   
http://www.scld-nci.net

EARLY DETECTION AND SCREENING
National Breast and Cervical Cancer Early Detection Program
Information on free or low-cost mammograms.
   
http://www.cdc.gov/cancer/nbccedp

National Cancer Institute (NCI)
Interactive breast cancer risk assessment tool.
   
http://bcra.nci.nih.gov/brc/q1.htm

Susan G. Komen for the Cure
Information on free or low-cost mammograms and other sources of financial assistance.
   
http://www.komen.org

U.S. Food and Drug Administration (FDA)
List of FDA-approved mammography facilities.
   
http://www.fda.gov/cdrh/mammography/certified.html

DIAGNOSIS
American Society of Clinical Oncology (ASCO)
Clinical guidelines and information on diagnosis.
   
http://www.cancer.net

Inflammatory Breast Cancer Research Foundation
Information on inflammatory breast cancer diagnosis and care.
   
http://www.ibcresearch.org

National Cancer Institute (NCI)
Information on different types of breast cancers as well as other types of cancer that can occur in the breast, such as Phyllodes tumor.
   
http://www.cancer.gov

Triple Negative Breast Cancer Foundation
Information on the triple negative breast cancer.
   
http://www.tnbcfoundation.org

TREATMENT—CLINICAL TRIAL INFORMATION
CancerConsultants.com
Free and confidential clinical trial matching and referral services.
   
http://www.cancerconsultants.com

CenterWatch
Information on participating in clinical trials and a searchable list of current clinical trials.
   
http://www.centerwatch.com

ECancerTrials.com
Free and confidential clinical trial matching and referral services.
   
http://ecancertrials.com

National Cancer Institute (NCI)
Information on participating in clinical trials.
   
http://www.cancer.gov/clinicaltrials

National Institutes of Health (NIH)
Information on current clinical trial research and participating in clinical trials.
   
http://www.cc.nih.gov
   
http://www.clinicaltrials.gov

Susan G. Komen for the Cure
Information about clinical trials. Clinical Trials Fact Sheet.
   
www.komen.org

University of Pittsburgh Medical Center (UPMC)—University of Pittsburgh Cancer Institute
Interactive website with information about clinical trials and personal stories.
   
http://www.upmccancercenters.com/trials/index.html

TREATMENT—INFORMATION ON TREATMENT OPTIONS
American College of Radiology
Information on current radiation therapy treatment options.
   
http://www.acr.org

American Society of Clinical Oncology (ASCO)
Treatment guidelines and information on treatment options.
   
http://www.cancer.net

American Society of Plastic and Reconstructive Surgeons
Information on breast reconstruction.
   
http://www.plasticsurgery.org

U.S. Food and Drug Administration (FDA)
Consumer information on breast implants.
   
http://www.fda.gov

COMPLEMENTARY THERAPY—GENERAL INFORMATION AND SEARCH TOOLS FOR SCIENTIFIC STUDIES
National Cancer Institute (NCI)—Office of Cancer Complementary and Alternative Medicine (OCCAM)
Detailed information on complementary and alternative medicine therapies for people living with cancer.
   
http://www.cancer.gov/cam

National Institutes of Health (NIH)—National Center for Complementary and Alternative Medicine (NCCAM)
Detailed information on complementary therapies.
   
http://nccam.nih.gov

National Library of Medicine—PubMed
Search tools for scientific articles on complementary therapies.
   
http://www.pubmed.com

Natural Medicines Comprehensive Medicine Database
Information on complementary therapies.
   
http://www.naturaldatabase.com

Natural Standard
Detailed information on complementary therapies.
   
http://www.naturalstandard.com

COMPLEMENTARY THERAPIES—SAFETY INFORMATION
National Institutes of Health (NIH)—Office of Dietary Supplements
Information and safety alerts on dietary supplements.
   
http://ods.od.nih.gov

U.S. Federal Trade Commission (FTC)
Safety alerts on complementary and alternative medicine therapies.
   
http://www.ftc.gov/bcp/menus/consumer/health.shtm

U.S. Federal Trade Commission (FTC)—Cure-ious Resource Page
Information on false cancer treatment claims; how to file a complaint.
   
http://www.ftc.gov/curious

U.S. Food and Drug Administration (FDA)
Safety alerts on complementary and alternative medicine therapies.
   
http://www.fda.gov/opacom/7alerts.html

U.S. Food and Drug Administration (FDA)—Fake Cancer Cures
Information on scam treatments.
   
http://www.fda.gov/cder/news/fakecancercures.htm

U.S. Food and Drug Administration (FDA)—MedWatch
Information on drug and medical products; how to file a report on a drug or medical product safety concern.
   
http://www.fda.gov/medwatch

U.S. Pharmacopeia (USP)
Information on whether a dietary supplement has been tested and USP verified for integrity, purity, and safe manufacturing.
   
http://www.usp.org/USPVerified/dietarySupplements

COMPLEMENTARY THERAPIES—LICENSING STATUS OF COMPLEMENTARY AND ALTERNATIVE MEDICINE PROVIDERS
American Association of Naturopathic Physicians
Information on the licensing status of naturopathic physicians.
   
http://www.naturopathic.org

American Massage Therapy Association
Information on the licensing status of massage therapists.
   
http://www.amtamassage.org

Federation of Chiropractic Licensing Boards
Information on the licensing status of chiropractors.
   
http://www.fclb.org

National Certification Board for Therapeutic Massage and Bodywork
Information on the licensing status of massage and bodywork therapists.
   
http://www.ncbtmb.com

National Certification Commission for Acupuncture and Oriental Medicine (NCCAOM)
Information on the licensing status of providers of acupuncture and Oriental medicine.
   
http://www.nccaom.org/find/index.html

COMPLEMENTARY THERAPIES—CLINICAL TRIALS
National Center for Complementary and Alternative Medicine
Information on and a listing of clinical trials of complementary therapies.
   
http://nccam.nih.gov/research/clinicaltrials
See also
Treatment—Clinical Trial Information
.

COMPLEMENTARY THERAPIES—INTEGRATED HEALTH CARE ORGANIZATIONS AND CENTERS
National Library of Medicine—Directory of Health Organizations
Information on local health care organizations and centers offering complementary/integrative therapies.
   
http://dirline.nlm.nih.gov

GETTING GOOD CARE
Administrators in Medicine—Association of State Medical Board Executive Directors
Information on finding a licensed physician.
   
http://www.docboard.org

American Board of Medical Specialties (ABMS)
Information on verifying whether a physician is board certified.
   
http://www.abms.org